We had our first visit with early intervention therapists yesterday. Because delays are expected in children with Down syndrome, an early intervention evaluation is done as soon as possible. While it's nice that this all gets started now, it's a little bizarre to do goal setting for a one month old. Really I suppose it's more for me. The goals are things the therapist wants Daniel to be doing in a month, but mostly we talked about ways I can encourage him to do those things.
Anyway, I'm mostly writing this so that in a month when I start talking about seeing the physical therapist you won't be all, "Wait, what?"
He is STILL on oxygen which is obnoxious because the pediatrician okayed a test a week ago. Apparently there was a miscommunication though, because when Brian talked to the oxygen company today they said they had nothing from our pediatrician's office. And then when he talked to the pediatrician's office they said they had sent over everything the oxygen company would need. They're sending it again now, but UGH. I am ready to be done with the tether.
Well that's super annoying. The oxygen part that is.
ReplyDeleteI agree that it is nice that the intervention gets started right away. But I agree that it seems a little odd. I think it is kind of funny that a tiny baby is going to have "work" to do. :)
ReplyDeleteYay! I hope you're about to meet some really fantastic people that will work with Daniel. I have some really awesome memories of the early days with Pacey in therapy. When he was just a few months old, he learned that he could pretend to sleep if he was DONE with therapy. Seriously, the minute the therapist would leave, he'd perk right back up.
ReplyDeleteIf you ever have any questions about EI or therapies or anything, feel free to email me!
jaidaharris at gmail dot com